Welcome to Parkinson's Research and Education Foundation
The Parkinson’s Research and Education Foundation (PREF) is a 501(c)(3) not-for-profit charitable organization (TIN# 20-0888895) whose mission is to support research initiatives and the projectSUNSHINE research database; educational and wellness programs; support groups and services; and regional and website outreach for patients with Parkinson's disease and their caregivers.
PREF fills vital unmet needs by providing educational, wellness, and supportive activities that are crucial to help patients, caregivers and family members cope with the challenges that are encountered from diagnosis through the long-term treatment for Parkinson’s disease. These include: patient and caregiver support groups, educational symposiums, dance therapy, Tai Chi, music therapy, chair yoga, art therapy, balance workshops, safety seminars, Rise and Shout, acting therapy, vestibular boxing, and Parkinson’s 101 ongoing educational lectures.
PREF also provides support for projectSUNSHINE, an epidemiological longitudinal research database initiative which is one of the largest collections of epidemiological information on Parkinson’s disease in the elderly in the world. This research database has led to the presentation at scientific meetings on Parkinson’s disease of numerous studies identifying more optimal treatment strategies in PD.
On December 5, 2011, the Michael J. Fox Foundation for Parkinson’s Research and the Parkinson’s Research and Education Foundation (PREF) of Boca Raton partnered to present an Educational “Research Roundtable” Symposium in the Dawson Theatre at Boca Raton Regional Hospital. Over 250 guests attended the Educational “Research Roundtable” Symposium which featured a discussion and Q&A session with Todd Sherer, PhD, CEO of the Michael J. Fox Foundation for Parkinson’s Research, and Stuart H. Isaacson, MD, Medical Director of the Parkinson’s Research and Education Foundation. The two nationally regarded Parkinson’s experts spoke about the latest research studies and emerging therapies for Parkinson’s Disease. The Symposium was followed by a fundraising cocktail reception at the newly opened Phillipe Chow in Boca Raton. This event raised funding for Parkinson’s Disease research, support services, and educational and wellness programs in the community.
At the Research Roundtable Symposium, Dr. Sherer described how the MJFF has successfully partnered with pharmaceutical companies to speed development of novel treatments for Parkinson’s disease. Dr. Isaacson highlighted how these efforts have led to “over sixty new medications for Parkinson’s disease in clinical trials in the US with over a dozen of these clinical studies underway at the Boca Raton site alone. These include clinical trials to not only treat symptoms of dyskinesia, off periods, hallucinations, and orthostatic hypotension, but also several research programs aimed at slowing progression of the disease.”